What: A 5K Run/Walk with the purpose of raising awareness of and funds for research and patient care for the set of disorders supported by the Children's Tumor Foundation , the neurofibromatoses (types I and II and schwannomatosis). These are a set of disorders that are quite common (approximately 1:2500-3000 people) and characterized by painful and disfiguring tumors in children and adults, bone problems, learning disabilities, deafness, and extreme pain. All funds raised will be donated directly to the CTF, which advocates for patients, supports research, and attempts to raise awareness of these disorders in the health care community and the world as a whole.
Participants will also be encouraged to fundraise.
Mission Statement: The Children's Tumor Foundation. is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). The mission of The Children's Tumor Foundation, is to: " Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"); " Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information; " Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and, " Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.
When: Saturday, August 2nd, 2008 at 8:30 AM Where: Northview Christian Life Church 5535 E. 131st St. Carmel, IN 46033 The church campus has a self-contained course, which offers a unique combination of on-road and off-road running and walking.
Who: All ages, genders, and skill levels welcome. Prizes will be provided in age/gender categories. Early registration (prior to July 22nd), $15.00, and late registration (July 22nd to the day of the race), $20.00. Late registrants are not guaranteed a T-Shirt. Participants are encouraged to use the Donation Fundraising Page associated with the race. All funds raised by participants will be used by the CTF to support research, patient advocacy, and patient care for those affected by NF.
When registering, please follow these instructions: Click on this link then click the Register for this Event tab and click on the Register Now Tab. Create a free active.com account, then click on 2008 Running Events. Chasing Down the Cure should show up as the 2nd race on the page. Follow instructions from there.
Course map:
Thursday, June 19, 2008
Friday, June 13, 2008
This just in...
A researcher for a NF cure here in Indianapolis contacted the NF Endurance Team director, Steve Kendra, about putting on a 5K race to benefit CTF. Steve emailed me to make me aware of this exciting opportunity to raise funds for NF. I emailed the gentleman who started the process to offer the support of Anneliese's Road Racers. Details are still being formed but here is what we know so far for the 5K:
What- 5K Run/Walk(3.1 mile) race to benefit Children's Tumor Foundation
Date- August 2
Time- 8:30 AM
Location- Northview Christian Church @ 146th and Hazel Dell in Carmel, IN
Price- $15 early registration, $20 day of race
Sponsorship opportunities are available. Let me know if you have any questions.
What- 5K Run/Walk(3.1 mile) race to benefit Children's Tumor Foundation
Date- August 2
Time- 8:30 AM
Location- Northview Christian Church @ 146th and Hazel Dell in Carmel, IN
Price- $15 early registration, $20 day of race
Sponsorship opportunities are available. Let me know if you have any questions.
Tuesday, May 27, 2008
Saturday, May 17, 2008
A week ago, we went to the Kentucky Scottish Weekend...
My aunt Bea and uncle Jesse have directed the Kentucky Scottish Weekend for 26 years. Last Saturday Liz and I took the girls down to check the event out. It was the first time any of us had gone. The trip promised to be fun filled with seeing family and watching a unique brand of Scottish entertainment. So away we went.
Before I get into the pictures I have to thank a stranger who really came through with a "kick save" for us while we were driving to General Butler State Park in Carrolton, KY where the festival is held. We were on KY36 about 10 minutes from the park when we encountered a ROAD CLOSED sign. We hadn't seen any detour signs along the way so this took us by surprise. I pulled off the road to call ahead for suggestions when a truck pulled up beside us. The driver said, "I don't want to be nosy but are you going to the Scottish festival?" We said yes. He said "Well follow me, I live around here and I will lead you most of the way..." And so he proceeded to take us over windy, narrow back roads with steep drop offs and no guard rails. Liz had her eyes closed the whole time. About 15 minutes later we were back on normal roads and just a few minutes from the park. A traffic jam created a second reroute. At this point the kind stranger said "Follow me, I'll take you the rest of the way." He ended up leading us right to the park. This is one that I will definetely pay forward. Needless to say we took the interstate home.
Liz and Anneliese go for a train ride
My sister, Shelley, volunteered for the event and hung out with us for a bit
Cousin Robin and Emmeline hanging out
Aunt Bea and her good friend Cass enjoying the band Mactalla Mor
Cousin Pam and Anneliese chatting with a singer from Mactalla Mor after the "congo line" ended
The pipers of Mactalla Mor
The event featured something for everyone. Dancers. Music. British car show. Athletics. Border collies. Good food. and more.
Before I get into the pictures I have to thank a stranger who really came through with a "kick save" for us while we were driving to General Butler State Park in Carrolton, KY where the festival is held. We were on KY36 about 10 minutes from the park when we encountered a ROAD CLOSED sign. We hadn't seen any detour signs along the way so this took us by surprise. I pulled off the road to call ahead for suggestions when a truck pulled up beside us. The driver said, "I don't want to be nosy but are you going to the Scottish festival?" We said yes. He said "Well follow me, I live around here and I will lead you most of the way..." And so he proceeded to take us over windy, narrow back roads with steep drop offs and no guard rails. Liz had her eyes closed the whole time. About 15 minutes later we were back on normal roads and just a few minutes from the park. A traffic jam created a second reroute. At this point the kind stranger said "Follow me, I'll take you the rest of the way." He ended up leading us right to the park. This is one that I will definetely pay forward. Needless to say we took the interstate home.
Liz and Anneliese go for a train ride
My sister, Shelley, volunteered for the event and hung out with us for a bit
Cousin Robin and Emmeline hanging out
Aunt Bea and her good friend Cass enjoying the band Mactalla Mor
Cousin Pam and Anneliese chatting with a singer from Mactalla Mor after the "congo line" ended
The pipers of Mactalla Mor
The event featured something for everyone. Dancers. Music. British car show. Athletics. Border collies. Good food. and more.
Wednesday, May 14, 2008
Tuesday, May 13, 2008
Thursday, May 8, 2008
The mini by numbers...
I'm a numbers guy. Growing up I was the king a baseball stats. I guess that is why I gravitated towards sales, sales is very numbers driven. Having said all that I figured I would paint a numerical picture of the mini since a picture is worth a thousand numbers.
From
Summary number of finishers: 30081
number of females: 15747
number of males: 14320
average time: 02:29:34
My Mini results
YEAR *** OVERALL *** DIVPL *** SEXPL *** TIME *** PACE
2008 *** 5609 *** 701/2084 *** 4373/14320 *** 1:54:24 *** 8:44
2007 *** 10249 *** 1102/1936 *** 6999/13972 *** 2:08:31 *** 9:49
2006 *** 9425 *** 1019/1818 *** 6677/13309 *** 2:03:45 *** 9:27
Pictures from the race are now posted at . Search for "500 Festival" and type in bib #14341. There are only a couple decent pictures from the crop this year.
From
Summary number of finishers: 30081
number of females: 15747
number of males: 14320
average time: 02:29:34
My Mini results
YEAR *** OVERALL *** DIVPL *** SEXPL *** TIME *** PACE
2008 *** 5609 *** 701/2084 *** 4373/14320 *** 1:54:24 *** 8:44
2007 *** 10249 *** 1102/1936 *** 6999/13972 *** 2:08:31 *** 9:49
2006 *** 9425 *** 1019/1818 *** 6677/13309 *** 2:03:45 *** 9:27
Pictures from the race are now posted at . Search for "500 Festival" and type in bib #14341. There are only a couple decent pictures from the crop this year.
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