CHASING DOWN THE CURE

What: A 5K Run/Walk with the purpose of raising awareness of and funds for research and patient care for the set of disorders supported by the Children's Tumor Foundation , the neurofibromatoses (types I and II and schwannomatosis). These are a set of disorders that are quite common (approximately 1:2500-3000 people) and characterized by painful and disfiguring tumors in children and adults, bone problems, learning disabilities, deafness, and extreme pain. All funds raised will be donated directly to the CTF, which advocates for patients, supports research, and attempts to raise awareness of these disorders in the health care community and the world as a whole.

Participants will also be encouraged to fundraise.

Mission Statement: The Children's Tumor Foundation. is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). The mission of The Children's Tumor Foundation, is to: " Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"); " Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information; " Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and, " Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.

When: Saturday, August 2nd, 2008 at 8:30 AM Where: Northview Christian Life Church 5535 E. 131st St. Carmel, IN 46033 The church campus has a self-contained course, which offers a unique combination of on-road and off-road running and walking.

Who: All ages, genders, and skill levels welcome. Prizes will be provided in age/gender categories. Early registration (prior to July 22nd), $15.00, and late registration (July 22nd to the day of the race), $20.00. Late registrants are not guaranteed a T-Shirt. Participants are encouraged to use the Donation Fundraising Page associated with the race. All funds raised by participants will be used by the CTF to support research, patient advocacy, and patient care for those affected by NF.

When registering, please follow these instructions: Click on this link then click the Register for this Event tab and click on the Register Now Tab. Create a free active.com account, then click on 2008 Running Events. Chasing Down the Cure should show up as the 2nd race on the page. Follow instructions from there.

Course map:

This just in...

A researcher for a NF cure here in Indianapolis contacted the NF Endurance Team director, Steve Kendra, about putting on a 5K race to benefit CTF. Steve emailed me to make me aware of this exciting opportunity to raise funds for NF. I emailed the gentleman who started the process to offer the support of Anneliese's Road Racers. Details are still being formed but here is what we know so far for the 5K:

What- 5K Run/Walk(3.1 mile) race to benefit Children's Tumor Foundation
Date- August 2
Time- 8:30 AM
Location- Northview Christian Church @ 146th and Hazel Dell in Carmel, IN
Price- $15 early registration, $20 day of race

Sponsorship opportunities are available. Let me know if you have any questions.