Tuesday, July 29, 2008
Still time to sign up...
Participate in the inaugural running of the Chasing Down the Cure 5K run/walk this Saturday, August 2 at 8:30 a.m. We are looking forward to a good turnout. I will try to get a lot of pictures from the race to post. Anneliese will have her own race bib and will be wearing her NF colors along with the new running shoes that she got for her birthday. Hope to see you there!
Sunday, July 20, 2008
Anneliese turns 4 and a trip to the zoo
My blogging has been stifled a bit by the busy pace of summer. I will try to do better!
Last week Anneliese turned 4. We had a big day for her. I took off of work to make sure we could get the most out of the day. Anneliese woke up early and she and I went to the local donut shop for donut breakfast. She picked out a donut for everyone. We ate breakfast then got her ready for Vacation Bible School. She went to VBS from 9:00 to 12:15. Emmeline and I did some errands that morning (including taking a TV and computer monitor to the haz mat drop off (bad year for electronics at our house)). Liz had some errands to run too.
When we are met back at home it was time for lunch. PB&J sandwiches and summer sausage, two of Anneliese's favorites. Then we played some games inside, played sand box outside, and finally packed up the troop for a downtown excursion.
We were on a mad hunt for Anneliese's b-day present from mommy and daddy-- a new pair of running shoes. No luck at Circle Center Mall. We looked around a bit then went to dinner at Rock Bottom Brewery so that Anneliese could get the pizza and french fries that she requested for birthday dinner.
After dinner we walked around downtown for a little bit. I asked Anneliese if she ever gets tired from walking. She said she does. I asked her how else we could see downtown without walking around. We talked about cars and bikes and being carried. Finally Liz said, "look around, do you see any other way of getting around?" Anneliese looked accross the street to where the surprise of the night awaited for her. She said "we could do that." pointing to a horse and carriage. We said that we were going to have a carriage ride.
The carriage was awaiting our arrival with a "Happy Birthday" banner on the back. Our driver, Scott, told us about our horse named Dazzle. She was new to the job and learning the ropes. Her reward for the word she performs is full medical, dental, and retirement and 6 months off at a local horse farm. Not a bad benefits package. So with a flick of the wrist the Clydesdale named Dazzle was leading the way of our tour. Anneliese loved the experience. Emmeline held strong most of the night. She did get a little fussy towards the end of the carriage ride. After the ride Anneliese was allowed to pet Dazzle. She was a little reluctant at first but eventually decided to give it a try.
After the carriage ride we headed home for cake and presents. The full day ended slightly after 9:00 for two worn out little girls and their exhausted parents.
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Saturday we went to the Indianapolis Zoo with Liz's lifelong friend Kelly, her husband Greg and their three kids. We had a nice day watching the dolphin show, petting animals (including dog sharks), eating a picnic lunch, playing hide-and-seek in the gardens, and wrapping up the day with dinner at the Oaken Barrel. Emmeline made it through the entire day with only a 30 minute nap. She slept in this morning and is already napping.
Anneliese had a blast playing with Kylie and Hannah. It took her a little while to warm up but they were really having a good time as the day went on. A carousel ride, playing in the Splash Zone, and ice cream were her highlites for the day. She isn't quite tall enough yet for the roller coaster, maybe next year.
Last week Anneliese turned 4. We had a big day for her. I took off of work to make sure we could get the most out of the day. Anneliese woke up early and she and I went to the local donut shop for donut breakfast. She picked out a donut for everyone. We ate breakfast then got her ready for Vacation Bible School. She went to VBS from 9:00 to 12:15. Emmeline and I did some errands that morning (including taking a TV and computer monitor to the haz mat drop off (bad year for electronics at our house)). Liz had some errands to run too.
When we are met back at home it was time for lunch. PB&J sandwiches and summer sausage, two of Anneliese's favorites. Then we played some games inside, played sand box outside, and finally packed up the troop for a downtown excursion.
We were on a mad hunt for Anneliese's b-day present from mommy and daddy-- a new pair of running shoes. No luck at Circle Center Mall. We looked around a bit then went to dinner at Rock Bottom Brewery so that Anneliese could get the pizza and french fries that she requested for birthday dinner.
After dinner we walked around downtown for a little bit. I asked Anneliese if she ever gets tired from walking. She said she does. I asked her how else we could see downtown without walking around. We talked about cars and bikes and being carried. Finally Liz said, "look around, do you see any other way of getting around?" Anneliese looked accross the street to where the surprise of the night awaited for her. She said "we could do that." pointing to a horse and carriage. We said that we were going to have a carriage ride.
The carriage was awaiting our arrival with a "Happy Birthday" banner on the back. Our driver, Scott, told us about our horse named Dazzle. She was new to the job and learning the ropes. Her reward for the word she performs is full medical, dental, and retirement and 6 months off at a local horse farm. Not a bad benefits package. So with a flick of the wrist the Clydesdale named Dazzle was leading the way of our tour. Anneliese loved the experience. Emmeline held strong most of the night. She did get a little fussy towards the end of the carriage ride. After the ride Anneliese was allowed to pet Dazzle. She was a little reluctant at first but eventually decided to give it a try.
After the carriage ride we headed home for cake and presents. The full day ended slightly after 9:00 for two worn out little girls and their exhausted parents.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Saturday we went to the Indianapolis Zoo with Liz's lifelong friend Kelly, her husband Greg and their three kids. We had a nice day watching the dolphin show, petting animals (including dog sharks), eating a picnic lunch, playing hide-and-seek in the gardens, and wrapping up the day with dinner at the Oaken Barrel. Emmeline made it through the entire day with only a 30 minute nap. She slept in this morning and is already napping.
Anneliese had a blast playing with Kylie and Hannah. It took her a little while to warm up but they were really having a good time as the day went on. A carousel ride, playing in the Splash Zone, and ice cream were her highlites for the day. She isn't quite tall enough yet for the roller coaster, maybe next year.
Wednesday, July 9, 2008
Fellow Bearcats in the '08 Olympics
Two former UC track stars made the US Olympic team out of the trials in Eugene, OR that took place over the past two weeks.
Mary Wineberg finished second in the 400M
David Payne will take part in the 110M Hurdles after taking third place in the trials
Mary Wineberg finished second in the 400M
David Payne will take part in the 110M Hurdles after taking third place in the trials
Thursday, June 19, 2008
CHASING DOWN THE CURE
What: A 5K Run/Walk with the purpose of raising awareness of and funds for research and patient care for the set of disorders supported by the Children's Tumor Foundation , the neurofibromatoses (types I and II and schwannomatosis). These are a set of disorders that are quite common (approximately 1:2500-3000 people) and characterized by painful and disfiguring tumors in children and adults, bone problems, learning disabilities, deafness, and extreme pain. All funds raised will be donated directly to the CTF, which advocates for patients, supports research, and attempts to raise awareness of these disorders in the health care community and the world as a whole.
Participants will also be encouraged to fundraise.
Mission Statement: The Children's Tumor Foundation. is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). The mission of The Children's Tumor Foundation, is to: " Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"); " Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information; " Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and, " Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.
When: Saturday, August 2nd, 2008 at 8:30 AM Where: Northview Christian Life Church 5535 E. 131st St. Carmel, IN 46033 The church campus has a self-contained course, which offers a unique combination of on-road and off-road running and walking.
Who: All ages, genders, and skill levels welcome. Prizes will be provided in age/gender categories. Early registration (prior to July 22nd), $15.00, and late registration (July 22nd to the day of the race), $20.00. Late registrants are not guaranteed a T-Shirt. Participants are encouraged to use the Donation Fundraising Page associated with the race. All funds raised by participants will be used by the CTF to support research, patient advocacy, and patient care for those affected by NF.
When registering, please follow these instructions: Click on this link then click the Register for this Event tab and click on the Register Now Tab. Create a free active.com account, then click on 2008 Running Events. Chasing Down the Cure should show up as the 2nd race on the page. Follow instructions from there.
Course map:
Participants will also be encouraged to fundraise.
Mission Statement: The Children's Tumor Foundation. is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). The mission of The Children's Tumor Foundation, is to: " Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"); " Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information; " Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and, " Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.
When: Saturday, August 2nd, 2008 at 8:30 AM Where: Northview Christian Life Church 5535 E. 131st St. Carmel, IN 46033 The church campus has a self-contained course, which offers a unique combination of on-road and off-road running and walking.
Who: All ages, genders, and skill levels welcome. Prizes will be provided in age/gender categories. Early registration (prior to July 22nd), $15.00, and late registration (July 22nd to the day of the race), $20.00. Late registrants are not guaranteed a T-Shirt. Participants are encouraged to use the Donation Fundraising Page associated with the race. All funds raised by participants will be used by the CTF to support research, patient advocacy, and patient care for those affected by NF.
When registering, please follow these instructions: Click on this link then click the Register for this Event tab and click on the Register Now Tab. Create a free active.com account, then click on 2008 Running Events. Chasing Down the Cure should show up as the 2nd race on the page. Follow instructions from there.
Course map:
Friday, June 13, 2008
This just in...
A researcher for a NF cure here in Indianapolis contacted the NF Endurance Team director, Steve Kendra, about putting on a 5K race to benefit CTF. Steve emailed me to make me aware of this exciting opportunity to raise funds for NF. I emailed the gentleman who started the process to offer the support of Anneliese's Road Racers. Details are still being formed but here is what we know so far for the 5K:
What- 5K Run/Walk(3.1 mile) race to benefit Children's Tumor Foundation
Date- August 2
Time- 8:30 AM
Location- Northview Christian Church @ 146th and Hazel Dell in Carmel, IN
Price- $15 early registration, $20 day of race
Sponsorship opportunities are available. Let me know if you have any questions.
What- 5K Run/Walk(3.1 mile) race to benefit Children's Tumor Foundation
Date- August 2
Time- 8:30 AM
Location- Northview Christian Church @ 146th and Hazel Dell in Carmel, IN
Price- $15 early registration, $20 day of race
Sponsorship opportunities are available. Let me know if you have any questions.
Tuesday, May 27, 2008
Saturday, May 17, 2008
A week ago, we went to the Kentucky Scottish Weekend...
My aunt Bea and uncle Jesse have directed the Kentucky Scottish Weekend for 26 years. Last Saturday Liz and I took the girls down to check the event out. It was the first time any of us had gone. The trip promised to be fun filled with seeing family and watching a unique brand of Scottish entertainment. So away we went.
Before I get into the pictures I have to thank a stranger who really came through with a "kick save" for us while we were driving to General Butler State Park in Carrolton, KY where the festival is held. We were on KY36 about 10 minutes from the park when we encountered a ROAD CLOSED sign. We hadn't seen any detour signs along the way so this took us by surprise. I pulled off the road to call ahead for suggestions when a truck pulled up beside us. The driver said, "I don't want to be nosy but are you going to the Scottish festival?" We said yes. He said "Well follow me, I live around here and I will lead you most of the way..." And so he proceeded to take us over windy, narrow back roads with steep drop offs and no guard rails. Liz had her eyes closed the whole time. About 15 minutes later we were back on normal roads and just a few minutes from the park. A traffic jam created a second reroute. At this point the kind stranger said "Follow me, I'll take you the rest of the way." He ended up leading us right to the park. This is one that I will definetely pay forward. Needless to say we took the interstate home.
Liz and Anneliese go for a train ride
My sister, Shelley, volunteered for the event and hung out with us for a bit
Cousin Robin and Emmeline hanging out
Aunt Bea and her good friend Cass enjoying the band Mactalla Mor
Cousin Pam and Anneliese chatting with a singer from Mactalla Mor after the "congo line" ended
The pipers of Mactalla Mor
The event featured something for everyone. Dancers. Music. British car show. Athletics. Border collies. Good food. and more.
Before I get into the pictures I have to thank a stranger who really came through with a "kick save" for us while we were driving to General Butler State Park in Carrolton, KY where the festival is held. We were on KY36 about 10 minutes from the park when we encountered a ROAD CLOSED sign. We hadn't seen any detour signs along the way so this took us by surprise. I pulled off the road to call ahead for suggestions when a truck pulled up beside us. The driver said, "I don't want to be nosy but are you going to the Scottish festival?" We said yes. He said "Well follow me, I live around here and I will lead you most of the way..." And so he proceeded to take us over windy, narrow back roads with steep drop offs and no guard rails. Liz had her eyes closed the whole time. About 15 minutes later we were back on normal roads and just a few minutes from the park. A traffic jam created a second reroute. At this point the kind stranger said "Follow me, I'll take you the rest of the way." He ended up leading us right to the park. This is one that I will definetely pay forward. Needless to say we took the interstate home.
Liz and Anneliese go for a train ride
My sister, Shelley, volunteered for the event and hung out with us for a bit
Cousin Robin and Emmeline hanging out
Aunt Bea and her good friend Cass enjoying the band Mactalla Mor
Cousin Pam and Anneliese chatting with a singer from Mactalla Mor after the "congo line" ended
The pipers of Mactalla Mor
The event featured something for everyone. Dancers. Music. British car show. Athletics. Border collies. Good food. and more.
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